We Got What We Came For

The entire time during our extended EEG we waited and waited to capture an episode, doctors wanted 3, clear, good ones to use. We tried everything from sleep deprivation going to bed at 4 am and waking up at 8 am for vital checks, multiple days in a row, activities, and medication weeing.. you name it, we tried it! We felt like things may not go as planned and talked with the doctors to see if planning another EEG stay would be a good idea. Then, all of a sudden, you gave us one.

My god, I've never seen something so painful. Malia had her longest and hardest grand mal, ever. We were at 3 and a half minutes with every doctor and nurse on the floor by her side. The commotion and gut-wrenching feelings made my body unable to move. Malia's seizure ended up stopping several seconds before her emergency meds would have needed to be pushed. Little did we know that IF we had pushed her emergency meds the EEG would have ended then because the recovery effects it would cause would not give us clear imaging for any other episode occurrences. Malia's post-ictal was basically the rest of the day/night. It was so hard on her little body, that there was just nothing left. But, then, out of her sleeping, another one happened. There it was again, this weird mix of emotions when you're in an extended EEG, 4 hours away from home, with only 2 days left to capture EVERYTHING you need, seeing a huge progression in her seizure types- just a few hours before, then seeing the start of another episode and being both thankful and wishing it would never have happened.